It has been a busy week for lots of things, but I finally got a few things on the books. First, Alistair is scheduled to have his electrophysiology study done next Wednesday, May 20th, at Seattle Children's with Dr. Jack Salerno. We saw Dr. Salerno on rounds a time or two when Alistair was inpatient as a baby. I remember him to be very kind and comforting. It is an outpatient procedure, but it will be a very long day at the hospital nonetheless. A shout-out goes to my awesome cousin, Grete, for being available to take Gillian and spend the day with her. Gillian gets to skip school and have some fun!
We have become aware that all of this stuff with Alistair is beginning to take a toll on Gillian. She is around when we talk about all of this and all she hears is Alistair this and Alistair that and probably too much of "what are we going to do with Gillian?!" Yikes! We need to sit her down and talk to her about what exactly is going on and assure her that we will make sure she gets to have some fun this summer!
I also finally got through to the Mayo Clinic. As of right now, Alistair is slated for surgery on July 30th. I say "as of right now" because we are hoping that we can get that date changed. There is a tiny, minute chance that there could be an earlier date. Dr. Dearani is currently on vacation and when he returns, he can speak more accurately about his schedule and if there is indeed an earlier slot. Now that we have been in this mode and discussing this for so long, we are all ready for this next step and waiting until the end of July will take so long. The bigger issue is that Alistair will only be 5 weeks post op when he starts school in the Fall. While this is not the end of the world, he will not be able to participate in recess or P.E. for most likely the first 3 weeks of school and he will still be under sternum precautions. I will be checking in with Dr. Dearani's secretary next week. Stay tuned...
No comments:
Post a Comment