Getting Moving

Alistair had a quiet Sunday. He watched a movie with his sister and then in the evening watched another movie with his next door neighbor, Daniel. Alistair had invited Daniel to watch Silverado with him a few days ago and it has been hard to coordinate their time. We ran into him and his mom in the hallway and Alistair jumped right on inviting him to watch it! So they finally did it! It was an early evening as I wanted him to be rested for his work day!

He had a decent night, but got up and was subdued today. It took him until mid afternoon to really perk up, but he still worked hard and cracked jokes. He and recreation therapy today and for it he and Daniel went to Starbucks and had a drink and played Battleship. I was dismissed by Alistair to "get out of here!" with a sly Alistair smile and laugh! I appreciate the independence his is displaying and am glad he doesn't need or want us around constantly! He is really gaining confidence!

For PT today he had a whole hour and boy did he work! After doing some stretches and exercises, his therapist had him roll to his stomach. He did some supermans, got up on his elbows and then up to hands and knees. She then had him crawl up and back a few times. This was done quite well, with a little difficulty from his troublesome right arm. She then pulled out an exercise ball where he would sit on it and bounce to work on his core strength and stability then stand up and hold on to the table in front of him for a short time. He got a little break in his chair while moving over to the parallel bars. She had him stand up in them and then WALK to the other end and back. He was a little hesitant but did it. His right leg and foot weren't excited about the movement, but he made it work with a bit of a limp. With time and more work, he will get it all coordinated!

We know a handful of people who work at the hospital...like 5 or 6 (besides providers we have seen for 9 years), but to the nurses it seems we know EVERYONE! Just another reason we wanted to get home to Seattle Children's - friends and family at home and friends at the hospital! Thank you to our friends at the hospital for making frequent visits to check-in, bringing coffee or other treats and today to Tim for sitting with Alistair when we had an hour between when I had to leave and Seth could be there! Sounds like Tim and Alistair hung out and watched Teen Titans Go! Not too shabby, for either of them!!

One of Seth's co-workers, who is a former Children's employee, visited Alistair and Seth on Saturday. They took her to the rooftop garden. On the way back, she pointed out the Pee River to them. Of all the colors to make the water, they made it yellow. I casually mentioned it to one of the nurses and she knew exactly what I was talking about. Today Alistair wanted me to take a photo of him in front of the River of Pee while holding his nose to send to Seth's co-worker. Just another example of how Alistair's sense humor is well intact!